Father Perspectives

Fathers of children with haemophilia.






Father perspectives

Father of an eight-year-old child with haemophilia:

Parents must treat the condition as a team, as with any other difficulty involved in bringing up a child. We take into account our child’s haemophilia, just like all the other daily problems that go with having children.

Father of a nine-year-old with haemophilia:

For us parents, a special difficulty associated with the disease comes up regularly: How can we give our child self-confidence while still keeping him alert to the risks of many physical activities?

Father of a nine-year-old child with haemophilia:

Sure, there’ll be hard times, for them and for you, too. But keep a level head, don’t wrap your child in cotton wool. You have to live and talk normally.

Father of a seven-year-old child with haemophilia:

We have always dealt with the haemophilia together. We have thought from the beginning that our son’s condition is a part of our family life, just in the same way as our first child, who doesn't have haemophilia.

Father of a nine-year-old with haemophilia:

When each school year begins time is needed for the teacher of the class to become aware of the possible consequences of some events which would normally be considered unimportant.

President of the World Federation of Hemophilia (WFH) from 2004-2012.



Advices to parents with children.



Mum of three boys.