• What is haemophilia? We will tell you the story.
  • What does it mean to you to have haemophilia?
  • Living with haemophilia
  • Life with haemophilia
 

What is haemophilia

We will tell you the story.

What is haemophilia?

Haemophilia is a lifelong, X-linked genetic bleeding disorder which affects around 1 in 10,000 people. People with haemophilia do not have enough of the blood clotting protein (factor) which controls bleeding. This causes them to bleed for a longer time than those whose factor levels are normal. With haemophilia, bleeding often occurs into the muscles or joints. When bleeding occurs frequently into the same joint, the joint can become damaged. 

Haemophilia A

Haemophilia A is the most common form of haemophilia and occurs when the person does not have enough clotting factor VIII (factor eight).

Treatment

Early on-demand or preventative (prophylactic) therapy to replace the missing coagulation factor is usually able to effectively control or prevent acute bleeding.

 

Haemophilia Timeline

The journey of haemophilia

Octapharma is a company dedicated to the development of human proteins and continues to be part of this journey of haemophilia care.

Explore the history yourself by scrolling through the years.

1828

1840

1901

1926

1944

1950s

1952

1958

1965

1970s

1980s

1982

1983

1984

1985

1990s

1992

1995

1997

2012

2014

 

Comic Books

Understand haemophilia

These comics have been created with the aim of engaging teenagers to help them better understand haemophilia. "Alexandre’s Story Comic" is about a 14 year old boy with haemophilia and includes topics of family, genetics, prophylaxis and self infusion. In the "History of Haemophilia Comic" an old man tells the fascinating history of haemophilia covering the first early theories and treatment of the disease through to the development of factor concentrates. 

Alexandre’s Story
Comic

History of Haemophilia
Comic

DownloadDownload
 

My story

Interviews with …

President of the World Federation of Hemophilia (WFH) from 2004-2012.

MARK SKINNER

Interview

Advice to parents and children.

MOTHER AND SON

Interview

Mother of three boys.


TRACEY WOODWARD

Interview

Fathers of children with haemophilia.

FATHER PERSPECTIVES

Interview

 

 


Details of clinical trials sponsored by Octapharma are provided at clinicaltrials.gov and clinicaltrialsregister.eu


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